Julie Johnson, RN

University of Illinois at Chicago PhD

I am a research nurse at The University of Chicago and have worked on issues related to palliative care and decision making at the end of life for the past four years. I have most recently been working with Drs. Sulmasy (UChicago) and Nolan (Johns Hopkins) on an empirical study aimed at understanding and improving the ethical treatment of patients, especially at the end of life. Our team has focused especially on the role of surrogates in decision making for decisionally incapacitated patients. I am the primary site coordinator and am the qualitative interviewer for both sites. I have experience in the areas of subject recruitment and retention, data management, and internal auditing. I provide support to other research nurses in the area of source document design, and I teach a module on source document design for the Office of Clinical Research’s course, Fundamentals of Clinical Research. I hold a baccalaureate degree in nursing from Georgetown University and a master’s degree in public health from The University of Illinois at Chicago. I am currently a full time PhD student at The University of Illinois at Chicago where I’ve been the TA for Epidemiology for two semesters. I am the President of the Ebury Court Condo Association and the co-chair for the Urban Prairie Waldorf School Gala. Lastly, I am a wife and the mother of two rambunctious boys, ages 7 and 5.


Research/Clinical Practice Area: Jonas Veteran Healthcare – Palliative/End-of-life Care
Dissertation: Dignity and the Caregiver Perspective

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